wHAT IS EDS AND wHY AM I ALwAYS SO TIRED?

wHAT IS EDS AND wHY AM I ALwAYS SO TIRED?

How narcolepsy patients with excessive daytime sleepiness (EDS) present.

Narcolepsy patients may describe EDS in various terms.1-4

  • Frequently, they do not use words such as “sleepiness” or “drowsiness.”2-4
    • Instead, they may complain of vague symptoms such as “tiredness” or “fatigue.”2,4
  • The first challenge for the clinician is to distinguish “sleepiness” from “fatigue.”3
    • Fatigue is described as a feeling of tiredness, lack of energy, or general sense of exhaustion.2,3
    • Sleepiness is the inability to avoid falling asleep.3
  • Patients with EDS may also appear depressed, irritable, or hyperactive.2,3
  • A comprehensive sleep history is the most important aspect in evaluating EDS.3

Terms to listen for in taking the history of a patient who may have EDS.

Patients may describe EDS as...1-3

  • A persistent sense of mental cloudiness
  • Abnormal feelings of fuzziness or grogginess
  • Difficulties with memory, concentration, and attention
Key questions for evaluating excessive sleepiness.

Key questions for evaluating excessive sleepiness.

It may be helpful to ask...2

  • Does the sleepiness occur only when in a quiet situation or also when the patient is active?
  • What is the patient’s sleep-wake schedule (what time does he or she go to bed and get up on weekdays and weekends)?
  • Does the sleepiness occur during situations that would compromise safety?
  • Are there other sleep features that may identify the cause of sleepiness?
  • Does the patient take naps?
  • What medications is the patient taking?

Interested in more insights?

Find out how patients talk about EDS in their own words.

This video represents actual patients describing EDS using their own words. Not all patient experiences will be the same.

EDS may affect your patients in many ways.

HOW PATIENTS EXPERIENCE EDS