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XYREM Patient & Caregiver Mentor Connections

Sometimes talking to or hearing from someone who has had similar experiences can be incredibly helpful. XYREM'S Patient & Caregiver Mentor Connections gives you the opportunity to speak with someone who understands XYREM treatment and has lived with the symptoms of narcolepsy: excessive daytime sleepiness (EDS) and cataplexy.

The program gives you a chance to be in contact with XYREM patients or caregivers in order to learn more about living with 2 common symptoms of narcolepsy — EDS and cataplexy — and treatment with XYREM from someone with firsthand experience. These individuals, called XYREM Mentors, are available to speak one-one-one with adult patients or caregivers by phone.

Meet our mentors

These dedicated patients and caregivers want to help others like you by sharing their experience and offering support.

We owe it to ourselves to help each other through this.

Michelle—cataplexy & EDS in narcolepsy

Michelle

We owe it to ourselves to help each other through this.

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Bob

It helps to stay positive throughout the journey.

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Lauren

Opening up and talkng to others about your condition can help.

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Ruth

When you need support or help from others, don’t be afraid to ask for it.

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Eric

Take charge of your condition with the right resources.

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Bobbi Jo

You shouldnt have to feel alone.

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Ashley

Connecting with other patients can be an inspiration.

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Robin

Dont isolate yourself from the people in your life.

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Chris

Finding support from others can mae all the difference.

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Jami

Talking with someone who understands can help with the journey.

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Elizabeth

I started meeting other people with narcolepsy, which was such a huge turning point for me.

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Anna

In order to stay positive, I have to take things one step at a time.

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Shari

You have to be patient and flexible with those that suffer with narcolepsy.

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Ricky

Never give up, never settle, and be open-minded about treatment.

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Kelli

Come alongside them for their challenges and celebrate their successes.

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Rebecca

Where we ended one journey, we were starting a new one.

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Patient Mentor Videos
  • Caregiver Mentor Videos
  • REGISTER FOR PATIENT & CAREGIVER MENTOR CONNECTIONS

    Mentors live across the country, so depending on their location and schedule, it may take a couple of days to arrange your call. As soon as you are matched with a Mentor, you will receive an email or phone call that will tell you when your conversation will take place.

    Before your call, you’ll receive a reminder email, and afterwards, you’ll receive a short email survey to find out how it went. You can have up to 3 calls with the Mentor.

    Please be aware that your identity is confidential, but the Mentor is obligated to report any adverse events (side effects of XYREM) that you may mention during the call. The Jazz Pharmaceuticals Drug Safety Department may follow up with you to get the specific information.

    The Mentor will only speak from personal experience and will refer you back to your physician or other resources for additional information. Important Safety Information will also be reviewed during your call.

    Register

    Please fill out the form below (*=required)

    I would prefer a

    between the ages of

    who speaks

    Please provide 3 dates and call-time ranges that you are available for your Mentor call

    Preferred call Time #1
    I am available for a call on:
    between
    Preferred call Time #2
    I am available for a call on:
    between
    Preferred call Time #3
    I am available for a call on:
    between
    How would you prefer to be contacted to confirm the program logistics of your call?
    How would you prefer to be connected with your Mentor? (select one)*
    If you are not available, may we or your Mentor leave a message with another member of your household or voicemail?
    Would you like to receive a text reminder before your scheduled Mentor call?

    Which topics are you interested in discussing with your Mentor?

    Topics in relation to your cataplexy and/or excessive daytime sleepiness (EDS) associated with narcolepsy (check all that apply)
    Jazz Pharmaceuticals respects your interest in keeping your personal information private. The personal information you provide will be used by Jazz Pharmaceuticals and the third parties working with Jazz Pharmaceuticals to register you in the Patient & Caregiver Mentor Connections program. We will not sell or rent your personal information to any third party. For more information about how Jazz Pharmaceuticals uses and protects your personal information, please click here to view our Privacy Statement. If in the future you no longer want to participate in the Patient & Caregiver Mentor Connections program, please call us at 1-888-200-1128. For any questions, or to register via phone, call 1-888-200-1128.

    Thank you for your interest in the Patient & Caregiver Mentor Connections.

    As soon as you are matched with a Patient or Caregiver Connection Mentor, you will receive an email or phone call that will tell you when your conversation will take place.
    If you have any questions, please do not hesitate to call us at
    1-888-200-1128.